The Lived Experiences: Conversations About Pain
Recorded Wednesday, September 16, 2020
Presenters will share their stories of living with persistent pain, their interactions with healthcare systems, and what it means to recover or live better with pain. These unique insights from the patient’s perspective serve to broaden the understanding of pain and pain treatment, complementing scientific research and clinical expertise.
This webinar furthers the use of the story and invites an engagement with the narrative through questions designed to deepen, expand, and highlight with the aim of supporting change in policy and practice.
All speakers consented to session being recorded in our planning meeting.
Emeralda Burke graduated from Trinity College, University of Dublin with a BSc in Medicinal Chemistry and is presently completing her masters in Health Evaluation. She is now a health researcher and pain advocate. One year after moving to Canada she was struck as a pedestrian by a stolen car. As a result of her sustained injuries she now lives with persistent pain. Prior to this life altering event, she worked as a research associate at Canadian Blood Services. This personal experience shifted her perspective to focus on improving the quality of life and services for those living with pain. Her mission is to spread awareness about persistent pain and destigmatize it in the hope that those living with pain are better understood by friends and family.
Therese is a former Nurse, who has had Arthritis, and Fibromyalgia for many years. Therese is on the Patient Engagement Committee of the SPOR Chronic Pain Network, A Member of the Steering Committee of the Canadian Arthritis Patient Alliance, (CAPA), and an Advisory Board Member of a Downtown Toronto Out- Patient program of CAMH for People with Complex Mental Illness. Therese is also on the Online Consumer Panel of the Arthritis Society.
Since developing Chronic Illness Therese has found relief and motivation from regular exercise and is a devoted member of the YMCA, and an advocate of many of the Arthritis Programs supported by the Y. Therese is a member of Women Speak Out, advocating for the homeless and underhoused population of Toronto.
Keith Meldrum. Member of IASP Global Alliance of Pain Patient Advocates Presidential Task Force and founder of A Path Forward blog.
Persistent pain advocate with a focus on the integration of the lived experiences of pain and patient narratives in the understanding, research, and management of pain. Highlighting the importance of pain science (the biological, psychological, and sociological elements), addressing the totality of people’s pain experience through patient-centred care, and the development of patient partners in research and system developments.
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